Living with Multiple Sclerosis (MS) while on Ocrevus (ocrelizumab) requires a comprehensive approach that includes medication management, lifestyle adjustments, and symptom control. Since Ocrevus is a powerful B-cell therapy that helps reduce relapses and slow disease progression, combining it with healthy habits can optimize your well-being. Here are some key tips to help you manage MS effectively while on Ocrevus:
1. Stay Consistent with Ocrevus Infusions
- Ocrevus is given every 6 months, so keep up with your infusion schedule to maintain its effectiveness.
- Monitor for side effects (e.g., infusion reactions, infections) and report them to your neurologist.
2. Infection Prevention (Ocrevus Weakens B-Cells)
- Since Ocrevus lowers B-cell counts, you may be more prone to infections.
- ✅ Get recommended vaccines (before starting Ocrevus or as advised by your doctor).
- ✅ Wash hands frequently and avoid close contact with sick people.
- ✅ Consider wearing a mask in crowded places during flu/COVID seasons.
- ❌ Avoid live vaccines (e.g., MMR, shingles) while on Ocrevus.
3. Manage Fatigue (A Common MS Symptom)
- Prioritize rest and practice energy conservation (pace yourself).
- Gentle exercise (yoga, swimming, walking) can help combat fatigue.
- Stay hydrated and maintain a balanced diet (anti-inflammatory foods may help).
4. Physical Therapy & Exercise
- Strengthen muscles to improve mobility and reduce spasticity.
- Balance exercises (e.g., tai chi) can help with coordination.
- Aquatic therapy (water exercises) is great for joint support.
5. Diet & Nutrition for MS
- Some evidence suggests anti-inflammatory diets (Mediterranean, Wahls Protocol) may help.
- Vitamin D (often low in MS patients) – ask your doctor about supplementation.
- Omega-3 fatty acids (found in fish, flaxseeds) may support brain health.
- Stay hydrated to help with bladder function (common MS issue).
6. Cognitive & Emotional Health
- Brain exercises (puzzles, reading, learning new skills) help with cognitive fog.
- Mindfulness & stress management (meditation, deep breathing) can reduce MS flare triggers.
- Therapy or support groups can help with emotional challenges.
7. Monitor for New Symptoms & Communicate with Your Neurologist
- Since Ocrevus reduces relapses, report any new or worsening symptoms (could indicate progression).
- Regular MRI scans help track disease activity.
8. Avoid Smoking & Limit Alcohol
- Smoking worsens MS progression—quitting can slow disability.
- Excessive alcohol can worsen balance and fatigue.
9. Temperature Sensitivity (MS & Heat)
- Many with MS experience worsening symptoms in heat.
- Use cooling vests, stay in shade, and avoid hot baths.
- Exercise in air-conditioned spaces or cooler times of day.
10. Plan for the Future
- Work with your healthcare team on long-term mobility aids if needed (canes, walkers).
- Consider occupational therapy for daily task adaptations.
Final Thoughts
Ocrevus is a strong disease-modifying therapy (DMT), but combining it with healthy lifestyle choices can further improve your quality of life. Always consult your neurologist before making major changes to your routine.
Would you like more details on any specific aspect (e.g., diet, exercise, managing side effects)? 😊